DIDO.1 22,845 Posted October 19, 2022 Report Share Posted October 19, 2022 Any one got any experience of the illness M.E Quote Link to post Share on other sites
mushroom 13,226 Posted October 19, 2022 Report Share Posted October 19, 2022 I went to school with a girl who had it (15years old she was). Seemed pretty debilitating for her but not spoken with her in years so couldn’t say how it progresses for her. Have you had a diagnosis mate? Quote Link to post Share on other sites
DIDO.1 22,845 Posted October 19, 2022 Author Report Share Posted October 19, 2022 3 minutes ago, mushroom said: I went to school with a girl who had it (15years old she was). Seemed pretty debilitating for her but not spoken with her in years so couldn’t say how it progresses for her. Have you had a diagnosis mate? No it's the Mrs. Not had a diagnosis but once everything else is ruled out that's sort of what your left with. Been referred for urgent full spinal scans....but they could take 12 months. It's been going on years really but just almost constant since her 3rd bout of covid 5 Quote Link to post Share on other sites
jukel123 8,571 Posted October 19, 2022 Report Share Posted October 19, 2022 Just now, DIDO.1 said: No it's the Mrs. Not had a diagnosis but once everything else is ruled out that's sort of what your left with. Been referred for urgent full spinal scans....but they could take 12 months. It's been going on years really but just almost constant since her 3rd bout of covid Long covid? Quote Link to post Share on other sites
DIDO.1 22,845 Posted October 19, 2022 Author Report Share Posted October 19, 2022 Just now, jukel123 said: Long covid? Maybe...but like I say she had cycles of absolute fatigue and crash. It was probably only once a year when she had it bad but covid seems to have made it more often Quote Link to post Share on other sites
lurcherman 887 13,259 Posted October 19, 2022 Report Share Posted October 19, 2022 2 minutes ago, jukel123 said: Long covid? Fallacy Quote Link to post Share on other sites
king 11,984 Posted October 19, 2022 Report Share Posted October 19, 2022 9 minutes ago, DIDO.1 said: No it's the Mrs. Not had a diagnosis but once everything else is ruled out that's sort of what your left with. Been referred for urgent full spinal scans....but they could take 12 months. It's been going on years really but just almost constant since her 3rd bout of covid Hopefully she will have the scans faster than that mate..fingers crossed Quote Link to post Share on other sites
jukel123 8,571 Posted October 19, 2022 Report Share Posted October 19, 2022 Just now, lurcherman 887 said: Fallacy THL's uniquely qualified medical spokesman has spoken. No more to be said. 1 2 Quote Link to post Share on other sites
DIDO.1 22,845 Posted October 19, 2022 Author Report Share Posted October 19, 2022 1 minute ago, king said: Hopefully she will have the scans faster than that mate..fingers crossed I can pay for them and get it done that week. She's having vitamin b12 injections Friday, if she's no better next week I'll pay private. Scandalous situation to be in, thank fck I have a bit put by 4 Quote Link to post Share on other sites
jukel123 8,571 Posted October 19, 2022 Report Share Posted October 19, 2022 I know a few people who have had to raid their hard earned savings to get private treatment. The NHS is struggling really badly. 1 Quote Link to post Share on other sites
DIDO.1 22,845 Posted October 19, 2022 Author Report Share Posted October 19, 2022 2 minutes ago, jukel123 said: I know a few people who have had to raid their hard earned savings to get private treatment. The NHS is struggling really badly. Surely not??? Quote Link to post Share on other sites
king 11,984 Posted October 19, 2022 Report Share Posted October 19, 2022 9 minutes ago, DIDO.1 said: I can pay for them and get it done that week. She's having vitamin b12 injections Friday, if she's no better next week I'll pay private. Scandalous situation to be in, thank fck I have a bit put by Get her booked in for next week then mate. See what the scan results are.. 1 Quote Link to post Share on other sites
DIDO.1 22,845 Posted October 19, 2022 Author Report Share Posted October 19, 2022 1 minute ago, Griswald said: Does your wife exercise, exercise even if fairly light can be a great healer for the body & mind. She hasn't been doing as she's not been able to. But yeah I think when we shake off this slump we have to really look at diet and lifestyle. We do eat healthy, but apparently lots of things can act as triggers for ME , things like processed food or even caffeine. She's got an allergy test booked for December (10 month wait ) 1 Quote Link to post Share on other sites
jukel123 8,571 Posted October 19, 2022 Report Share Posted October 19, 2022 (edited) Stress can cause many symptoms. I can't remember a time when so many people are on edge. Covid,Ukraine, the cost of living crisis, job insecurity, energy uncertainty and the fact that we have no confidence in the political system, all contribute to a stressed out nation. That has an effect on people's ability to cope with infection. Not my idle opinion, but the opinion of qualified medics. I am not suggesting that stress is the cause of any particular individuals problem, just making a general observation. Edited October 19, 2022 by jukel123 3 Quote Link to post Share on other sites
paulus 26 Posted October 19, 2022 Report Share Posted October 19, 2022 My Auntie has suffered from it for a good number of years, good and bad days im afraid, Quote Link to post Share on other sites
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