a question!

[Bogger 243]

I have 3 kids 2 sons and a daughter, my youngest son was born normal then some stupid f*****g idiot mid wife force fed him a bottle and instead of it going in his stomach she filled his lungs and he had to be revived and then put on a ventalator for a week he pulled through ok in the end but 12 months later we noticed he wasnt using his right hand side at all and was diagnosed with cerebral paulsy (sorry about the spelling its shit) he hasnt been effected mentaly just phisicaly but he now has to go for physio they looked into what happened to him with the feeding and said that it had nothing to do with his cerebal paulsey it was a stroke in the womb that caused it any how they said he woudnt walk and he does he runs climbes and uses his his right leg and hand (not so much there very stiff and awkward for him but he is getting there) he gets treated no different to my outher two and is made to do stuff for him self they said he might have to go in a school that caters for his needs more and they were told to f**k off in no uncertain terms now he is 2 and you can hardly tell apart from the lack of use in his right hand and a slight limp. I am a big beliver in treat them different and people will treat them as different treat them as normal and they will act normal and be treated as such.

thats the same as my daughter but she has it in her left side of her body .The hospitals will never accept responsibility .All the best in the future and with the physio pal

yeh all the best to you and yours as well mate.

 

good going pal atb

[Malt 379]

My eldest son has got a rare genetic condition called cysteinuria. His body doesn't produce the right stuff to break down a certain protein called cysteine and so this protein just precipitates out into the blood as it is. If it gets too concentrated, it forms stones in the kidneys, so we have to ensure that he drinks at least 2 litres of fluid a day minimum, and check the ph levels in his urine. It doesn't affect him in day to day life so it's not difficult to manage. The only time it becomes a problem is when he's ill or in danger of becoming dehydrated. If he's sick for a prolonged period with a bug and can't keep water down, he has to go into hospital to be put on a drip until he's better. We were lucky as he was diagnosed at the age of two after he passed a stone in his nappy. Sometimes it goes unnoticed until the teens & the kidneys are so damaged they need removing. Like I say, it's not difficult to live with, but with it there is a 90% chance he'll develop more stones at some point in his life which plays on the mind.

 

I've grown up around kids with disabilities, my cousin is autistic and my youngest sister has several, severe learning disabilities. I know how much hard work it can be to look after such a child, so anybody who manages to do so has my utmost respect..

[scent 509]

jesus malt just aswell yee copped it at such an early age.Never heard off that before but i can imagine it does get difficult when the lad is ill.How old is he now pal

[Malt 379]

jesus malt just aswell yee copped it at such an early age.Never heard off that before but i can imagine it does get difficult when the lad is ill.How old is he now pal

 

8 now pal. Not long been for his yearly ultrasound scan so we're due to see his specialist again soon.

[scent 509]

jesus malt just aswell yee copped it at such an early age.Never heard off that before but i can imagine it does get difficult when the lad is ill.How old is he now pal

 

8 now pal. Not long been for his yearly ultrasound scan so we're due to see his specialist again soon.

hope it all goes well pal

[Malt 379]

jesus malt just aswell yee copped it at such an early age.Never heard off that before but i can imagine it does get difficult when the lad is ill.How old is he now pal

 

8 now pal. Not long been for his yearly ultrasound scan so we're due to see his specialist again soon.

hope it all goes well pal

 

Cheers!

[craigyboy 1,274]

thankfully ive got 3 healthy children,but if i was told one of them had downs before they were born,then i think we would of aborted,this world is cruel and hard enough for a normal child never mind one with downs,sorry but i couldnt do it

[Bogger 243]

My eldest son has got a rare genetic condition called cysteinuria. His body doesn't produce the right stuff to break down a certain protein called cysteine and so this protein just precipitates out into the blood as it is. If it gets too concentrated, it forms stones in the kidneys, so we have to ensure that he drinks at least 2 litres of fluid a day minimum, and check the ph levels in his urine. It doesn't affect him in day to day life so it's not difficult to manage. The only time it becomes a problem is when he's ill or in danger of becoming dehydrated. If he's sick for a prolonged period with a bug and can't keep water down, he has to go into hospital to be put on a drip until he's better. We were lucky as he was diagnosed at the age of two after he passed a stone in his nappy. Sometimes it goes unnoticed until the teens & the kidneys are so damaged they need removing. Like I say, it's not difficult to live with, but with it there is a 90% chance he'll develop more stones at some point in his life which plays on the mind.

 

I've grown up around kids with disabilities, my cousin is autistic and my youngest sister has several, severe learning disabilities. I know how much hard work it can be to look after such a child, so anybody who manages to do so has my utmost respect..

 

your a top bloke malt atb best to you and yours

[Malt 379]

My eldest son has got a rare genetic condition called cysteinuria. His body doesn't produce the right stuff to break down a certain protein called cysteine and so this protein just precipitates out into the blood as it is. If it gets too concentrated, it forms stones in the kidneys, so we have to ensure that he drinks at least 2 litres of fluid a day minimum, and check the ph levels in his urine. It doesn't affect him in day to day life so it's not difficult to manage. The only time it becomes a problem is when he's ill or in danger of becoming dehydrated. If he's sick for a prolonged period with a bug and can't keep water down, he has to go into hospital to be put on a drip until he's better. We were lucky as he was diagnosed at the age of two after he passed a stone in his nappy. Sometimes it goes unnoticed until the teens & the kidneys are so damaged they need removing. Like I say, it's not difficult to live with, but with it there is a 90% chance he'll develop more stones at some point in his life which plays on the mind.

 

I've grown up around kids with disabilities, my cousin is autistic and my youngest sister has several, severe learning disabilities. I know how much hard work it can be to look after such a child, so anybody who manages to do so has my utmost respect..

 

your a top bloke malt atb best to you and yours

Cheers pal.

[ulverston moocher 60]

all the best for the future with the boy malt

[Lab 10,979]

My eldest son has got a rare genetic condition called cysteinuria. His body doesn't produce the right stuff to break down a certain protein called cysteine and so this protein just precipitates out into the blood as it is. If it gets too concentrated, it forms stones in the kidneys, so we have to ensure that he drinks at least 2 litres of fluid a day minimum, and check the ph levels in his urine. It doesn't affect him in day to day life so it's not difficult to manage. The only time it becomes a problem is when he's ill or in danger of becoming dehydrated. If he's sick for a prolonged period with a bug and can't keep water down, he has to go into hospital to be put on a drip until he's better. We were lucky as he was diagnosed at the age of two after he passed a stone in his nappy. Sometimes it goes unnoticed until the teens & the kidneys are so damaged they need removing. Like I say, it's not difficult to live with, but with it there is a 90% chance he'll develop more stones at some point in his life which plays on the mind.

 

I've grown up around kids with disabilities, my cousin is autistic and my youngest sister has several, severe learning disabilities. I know how much hard work it can be to look after such a child, so anybody who manages to do so has my utmost respect..

Probably something thats never even crossed your mind with the wee lad mate is will be able to take a drink when he is older(alchohol i mean). Trivial matter in the circumstances i know but just something i wondered when reading your post....ATB with your son

[Malt 379]

My eldest son has got a rare genetic condition called cysteinuria. His body doesn't produce the right stuff to break down a certain protein called cysteine and so this protein just precipitates out into the blood as it is. If it gets too concentrated, it forms stones in the kidneys, so we have to ensure that he drinks at least 2 litres of fluid a day minimum, and check the ph levels in his urine. It doesn't affect him in day to day life so it's not difficult to manage. The only time it becomes a problem is when he's ill or in danger of becoming dehydrated. If he's sick for a prolonged period with a bug and can't keep water down, he has to go into hospital to be put on a drip until he's better. We were lucky as he was diagnosed at the age of two after he passed a stone in his nappy. Sometimes it goes unnoticed until the teens & the kidneys are so damaged they need removing. Like I say, it's not difficult to live with, but with it there is a 90% chance he'll develop more stones at some point in his life which plays on the mind.

 

I've grown up around kids with disabilities, my cousin is autistic and my youngest sister has several, severe learning disabilities. I know how much hard work it can be to look after such a child, so anybody who manages to do so has my utmost respect..

Probably something thats never even crossed your mind with the wee lad mate is will be able to take a drink when he is older(alchohol i mean). Trivial matter in the circumstances i know but just something i wondered when reading your post....ATB with your son

 

It's a strange one. On the one hand he's got to be careful about getting dehydrated, and on the other they reckon that the best thing to shift a stone is a good piss up on the larger! It's something that we'll have to ask his specialist at some point in the future..

[judge2010 196]

good man malt.

[Attack Fell Terrier 864]

Fair play Malt.

 

As for the kid going out on the piss, It's something I dread my lad doing, being a Diabetic. As I said other Diabetics I know who drink are all suffering badly for it now.

 

What ever happens I wish you and your family all the health and happiness life can give you. Best of luck mate .

[scothunter 12,609]

if he was scottish malt.you would need to ask the specialist just now lol

 

seriously though fair play to you,and wish the wee man all the best.obvious he has parents who watch out for him